Why is studying a large and diverse set of genomes important for medical applications of genomics?
What are some potentially negative consequences of using genomics-based information to diagnose diseases and figure out if someone may get a certain disease in the future?
Would you want to know if you are likely to get cancer or lose your eyesight later in life? What about knowing about your child’s chances of developing some future disease or your mother’s likelihood of suffering from Alzheimer’s? Do you think it is important that the government runs an Ethical, Legal and Social Implications (ELSI) Research Program?
National Human Genome Research Institute Genomic Medicine FAQ
Cold Spring Harbor Laboratory ELSI of Genome Research
World Health Organization Human Genetics program ELSI of human genomics